My Turn to go to the Doctor
So my internist did ask the million dollar question (thank you Katy and Kara for your astute medical knowledge...) "So why do you think these are migraines?" Uh...well...because I did get lots of headaches, sometimes with these episodes, although often not, and someone said so a long time ago and it never really got challenged or worked up. Well, my time has come.
The first passing out episode I had like this was when I was a young teen (I think...hard to remember) I did see a neurologist once upon a time who thought it was epilepsy, and then another said no, it wasn't. I can't really remember when or who decided they were migraines, but when I started taking preventive medicine my headaches did get a lot better. It was always assumed that my "episodes" were the aura that went with the migraine, as in the past I did get a headache. But over the past few years it has changed. So my official diagnosis is "syncope and collapse" . Do you think I might get some sympathy for my syncope?
So I had an EKG (normal) and we'll see what the Echo shows (I suspect nada) and then I guess it will be my turn to trot off to neurology. My primary did say I was very non chalant about the whole thing. But she also agreed that if I had some weird heart arrhythmia I probably would be six feet under by now, so that was tremendously reassuring. My last episode like this was about two years ago and somehow I managed not to pass out by the skin of my teeth, but really freaked out my co-worker (I was in California) who wanted to take me to the ER without passing go. I said "NO!" (And was I complaining about my mother as patient?!)
OK, so I had blood work, a tetanus shot so I'm covered for the next ten years if I step on something nasty, and I'll stay tuned.
In the meantime, there have been more health developments for my mom and Matt.
On my mom's MRI they really didn't come up with any plausible explanation for why she was falling, they did NOT see any signs of Alzheimer's (something that relieved her tremendously) but they did see a funky spot, that coupled with some weird blood results have now bought her a referral to the hematologist to rule out multiple myeloma (it involves that ugly "C" word and plasma cells). The neurologist also wants to do a couple more tests, so she will be back two weeks from Sunday for the next round of medical care.
As for Matt, let me just say I understand all about HIPPA and the need for confidentiality, but it can be a huge, let me say HUGE pain in the butt. Suffice it to say that there were MRI results, but since Matt wasn't here, no one could talk to me. I understood that, but patiently explained that he was away the (holiday) weekend somewhere where he could not get cell phone reception and would only be home Tuesday before disappearing for Ithaca. It would be really nice to talk to someone about results before he took off. Nothing. So he called Tuesday. Nothing; no one returned the call. So I called back at like 4:30 Tuesday afternoon and handed the phone to Matt. Everyone except a PA unfamiliar with his case had gone home for the day (surprise). OK. So why did I call on Friday afternoon trying to explain all of this?
So I emailed the doc, after getting Matt's written consent to satisfy the HIPPA police and got an email back saying so sorry, but he had left instructions to schedule an appointment with Matt immediately upon getting the MRI results. Um....let's see, that would have been Tuesday, but obviously there was a glitch.
He wants to discuss Matt's wrist face to face (good luck) but did say there was quite a bit of old trauma and that it probably had involved a break and torn ligaments since March (they missed the diagnosis in CO). Now this is not going to be fun. He does have insurance for the moment...since his internship is FT they reinstated him, but I'm not sure where surgery is going to fit in with his internship this fall and hopes for snowboarding next winter. Should be interesting.
Don't worry, I will keep you updated on negotiating the health system 101.
Labels: echodcardiogram, HIPPA, MRI, multiple myeloma, syncope
